Parents & Siblings
Autism Treatment Center of America THE SON-RISE PROGRAM at The Option Institute2080 S Undermountain Road
Sheffield, MA USA 01257
CAPP National Parent Resource CenterFederation for Children with Special Needs
95 Berkeley Street, Ste. 104
Boston, MA 02116
Voice 800-331-0688; 617-482-2915
The Federation is a center for parents and parent organizations to work together on behalf of children (up to age 22) with special needs and their families. The Federation operates a Parent Center in Massachusetts that offers a variety of services to parents, parent groups and others who are concerned with children with special needs.
ERIC Clearinghouse on Disabilities & Gifted Education Council for Exceptional Children1920 Association Drive
Reston, VA 20191
The Council for exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional ERIC development, advocates for newly and historically under served individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
Family VoicesBox 769
Algodones, NM 87001
A national, grassroots clearinghouse for information and education concerning the health care of children with special health needs. The Clearinghouse consists of collaborative efforts of families, a volunteer Coordinator in all states, 10 Regional Coordinators, and a small staff working in various locations across the country. These people work together to share experiences of families from across the country with the media, policymakers, health professionals, and other families.
HEATH Resource CenterAmerican Council on Education
1 Dupont Circle, #800
Washington, DC 20036
National clearinghouse on post-secondary education for individuals with disabilities. HEATH materials focus on a wide range of disability-related topics such as accessibility, career development, financial aid, functional limitations, independent living, severe or multiple disabilities, training and post secondary education, vocational education, and rehabilitation.
MUMS National Parent-to-Parent Network (Mother's United for Moral Support, Inc.)150 Custer Court
Green Bay, WI 54301
For parents or care provides of a child with any disability, MUMS' mission is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar conditions.
National Center for Youth with Disabilities (NCYD)Univ of Minnesota, Box 721
420 Delaware St, SE
Minneapolis, MN 55455
The National Center for Youth with Disabilities (NCYD) is an information, policy, and resource center focusing on adolescents with chronic illnesses and disabilities and the issues surrounding their transition to adult life. NCYD produces a variety of publications, offers conferences & workshops, and provides resources for program information, training/educational materials, and technical assistance.
National Parent Network on Disabilities1200 G Street NW, Suite 800
Washington, DC 20005
(202) 434-8686 (Voice/TDD)
The NPND is a not-for-profit organization which has established Parent Training and Information Centers (PTIs) located in all states and jurisdictions, which provide parents and family member groups with information, educational opportunities, training, supportive programs, and legislative information. Call for the PTI in your state.
New England Medical Center Rehabilitation & Childhood Trauma750 Washington Street NEMC #387
Boston, MA 02111
The Division of Pediatric Rehabilitation Medicine provides comprehensive diagnostic, evaluative, and continuing disability management services for children and adolescents with neurological, neuromuscular and musculoskeletal disorders.
NICHY (National Information Center for Children and Youth with Disabilities)PO Box 1492
Washington, DC 20013-1492
A national information and referral center that provides information on disabilities and disability-related issues. Children and youth with disabilities (birth to age 22) are their special focus. NICHCY's services include personal responses to your questions, NICHCY publications, referrals to other organizations and sources of help, information searches, and technical assistance. Materials in Spanish and alternative formats are available as well.
Our Kids, LLC300 Park Avenue,
New York, NY 10022
PACER Center4826 Chicago Avenue South
Minneapolis, MN 55417-1098
Phone: (612) 827-2966, (612) 827-7770, TDD or: 1-888-248-0822 (nationally)
Shriner's Hospitals for ChildrenInternational Headquarters
2900 Rocky Point Drive
Tampa, Florida 33607-1460
Shriners Hospitals for Children is a network of pediatric specialty hospitals, founded by the Shrine, where children under the age of 18 receive excellent medical care absolutely free of charge. There are 18 orthopedic Shriners Hospitals, three Shriners Hospitals dedicated to treating children with severe burns, and one Shriners Hospital that provides orthopedic, burn and spinal cord injury care. Shriners Hospitals are located throughout North America --20 in the United States and one each in Mexico and Canada. These "Centers of Excellence" serve as major referral centers for children with complex orthopedic and burn problems.
Siblings for Significant Change105 E. 22nd Street
New York, NY 10010
(Offers support to adults of autistic siblings.)
Sibling Information Network249 Glenbrook Road U-64
Storrs, CT 06269-2064
(Clearinghouse of information dealing with brothers & sisters who have a sibling with a disability. Any age. Quarterly newsletter, bibliography & listing of support groups.)
Sibling Support ProjectDonald Meyer, Director
Children's Hospital & Medical Ctr
PO Box 5371, CL-09
Seattle, WA 98105-0371
(Peer support and education program of brothers & sisters of kids with disabilities ages 8-13 years of age. Also offers training and technical support for local areas to organize "Sibshops".)
Winners On Wheels (WOW)2842 Business Park Avenue
Fresno, CA 93727
WOW is a non-profit organization for children who use wheelchairs. The WOW program is a social and recreational program to help develop youngster's self-esteem and to encourage them to be independent. There are currently 57 active chapters (Circles) nationwide with one international Circle in South Africa.